That little Ellie’s feet hurt when she ran revealed a parent’s nightmare: she had a very rare mitochondrial disease known as Leukodystrophy-LBSL. It has no current cure. #ImNotAverage
- Condition: Leukodystrophy-LBSL
- Age: 7
- Location: Arlington, VA
But there is hope in the form of two phase II clinical trials underway that could help Ellie and the tens of thousands of other children and adults fighting mitochondrial disease.
That hope – and innovative medical care – has Ellie back on her feet, running toward a future that could be very bright, indeed.